On Wednesday 23rd October the Senedd (the Welsh parliament) will debate and vote on a motion to support assisted dying. Submitted by Julie Morgan MS, the motion calls for “adults of sound mind who are intolerably suffering from an incurable, physical condition and have a clear and settled wish to die should have the option of an assisted death, subject to robust safeguards.” My Death, My Decision welcomes this debate and is providing Julie with support to bring about a vote by the Senedd in favour of compassion and dignity.

The motion had three co-submitters from Labour, Conservatives and Plaid Cymru and an additional five supporters. The Senedd does not have the power to change the law on assisted dying, as it is currently a matter governed by criminal law which is not devolved. This vote would therefore only be an ‘in principle’ vote. Nevertheless, support for assisted dying in the Senedd would shine the light on Westminster to enact a change in the law across the UK.

The motion notes that “if assisted dying were to be legalised, and given its responsibility for health and social care, the Welsh Government would require an in-depth understanding of any proposals.” 

Last year, My Death, My Decision, held an event in the Senedd hosted by James Evans MS and Jayne Bryant MS, where we shared personal stories and expertise on why the law needs to be changed. In June, Mark Drakeford the former first minister supported calls for a change in the law. 

The Senedd debated assisted dying a decade ago. They voted against the principles of assisted dying in 2014.

Trevor Moore, Chair of My Death My Decision, said:

“This is an historic moment for My Death, My Decision and for the campaign for assisted dying. We’ve been encouraging a debate in the Senedd for some years, because we believe Welsh people should have their say on this important issue. It’s been a decade since it was last debated, but this time we believe the vote will be very different.

This debate will be about a law for people who are intolerably suffering from incurable conditions, not one limited to people who are terminally ill. It’s important that people who are suffering from conditions like multiple sclerosis, Parkinson’s and locked-in syndrome are not ignored. People who are suffering unbearably deserve choice, compassion and dignity.”

Notes:

Members of the MDMD team, as well as individuals affected by the current law on assisted dying, are available for interview upon request

For further comment or information, media should contact Nathan Stilwell at nathan.stilwell@mydeath-mydecision.org.uk or phone 07456200033.

Media can use the following press images and videos, as long as they are attributed to “My Death, My Decision”.

My Death, My Decision is a grassroots campaign group that wants the law in England and Wales to allow mentally competent adults who are terminally ill or intolerably suffering from an incurable condition the option of a legal, safe, and compassionate assisted death. With the support of over 3,000 members and supporters, we advocate for an evidence-based law that would balance individual choice alongside robust safeguards and finally give the people of England and Wales choice at the end of their lives.

A poll commissioned by My Death, My Decision Northern Ireland has revealed that 67% of people support assisted dying to some degree. With 40% of people saying they definitely support introducing an assisted dying law in Northern Ireland. My Death, My Decision welcomes this public support and calls on Stormont to set up a citizens assembly, so that the people of Northern Ireland can have their voices heard.

3,443 people responded to the question posed by LucidTalk, which said: “Would you support the legalisation of assisted dying in Northern Ireland for adults of sound mind who are terminally ill or suffering intolerably from an incurable condition? The law would include rigorous safeguards.” 

• Definitely: 40%
• Probably: 27%
• Probably not: 9%
• Definitely not: 19%
• Don’t know not sure: 5%

Assisting anyone to die is illegal under Section 13 of the Criminal Justice Act (Northern Ireland) 1966. 

If anyone would like to join My Death, My Decision Northern Ireland, please contact mdmd.nireland@gmail.com or join their Facebook group.

The special Oireachtas committee in the Republic of Ireland recommended back in March that legislation should be introduced to allow for assisted dying. An important consequence of a law in the Republic is that Irish citizens (or ordinary residents for twelve months) would be eligible. This would allow Northern Irish applicants to be able to access an assisted death in the Republic under the Irish Nationality and Citizenship Act of 1956 and the Good Friday Agreement.

Gavin Walker, Chair of My Death, My Decision, Northern Ireland said:

“This is an overwhelming endorsement of our position that the people of Northern Ireland want their legislators to positively facilitate a debate on the issue of assisted dying. It is under consideration in every other jurisdiction across these islands, and it is time to begin the conversation here.

We understand this is a very sensitive issue for legislators, and to help frame the debate we are calling for the immediate establishment of a Citizens’ Assembly as outlined in the New Decade, New Approach Deal. This would facilitate a wide-ranging, evidence-based discussion on the issue across our community. We need a Northern Ireland-led approach to assisted dying legislation to ensure it will include the criteria and safeguards that best reflect what our society wants.”

Trevor Moore, Chair of My Death, My Decision, said:

“This poll has revealed that the people of Northern Ireland are keen to support an assisted dying law, giving suffering people the choice of how and when their lives might end with dignity.

In order to know what that law would look like in relation to safeguards and other key aspects, a valuable next step would be for Stormont to set up a Citizens’ Assembly. These have been used very effectively in places like France and Jersey as they allow citizens to have their say in much more depth.”

Notes:

Members of the MDMD team, as well as individuals affected by the current law on assisted dying, are available for interview upon request

Polling was carried out by Belfast based polling and market research company LucidTalk. The project was carried out online for a period of 4 days from 16th to 19th August 2024. 3,443 full responses were received. A data auditing process was then carried out to ensure all completed poll-surveys were genuine ‘one-person, one-vote’ responses, and this resulted in 1,051 responses being considered and verified as the base data-set (weighted and unweighted).

For further comment or information, media should contact Nathan Stilwell at nathan.stilwell@mydeath-mydecision.org.uk or phone 07456200033.

Media can use the following press images and videos, as long as they are attributed to “My Death, My Decision”.

My Death, My Decision is a grassroots campaign group that wants the law in England and Wales to allow mentally competent adults who are terminally ill or intolerably suffering from an incurable condition the option of a legal, safe, and compassionate assisted death. With the support of over 3,000 members and supporters, we advocate for an evidence-based law that would balance individual choice alongside robust safeguards and finally give the people of England and Wales choice at the end of their lives.

A pioneering Citizens’ Jury has strongly recommended the legalisation of assisted dying in England, with 20 out of 28 members supporting a change in the law. The jury, which included a cross-section of the English population, spent eight weeks engaging in deliberations on the topic, hearing from a wide range of experts.

The jury concluded that individuals with terminal illnesses who have the capacity to make their own decisions should be allowed both the option of an assisted death. They back the self-administration of life-ending medication and the administration by a healthcare professional. This has long been the policy of My Death, My Decision, but legislation in the UK to date has only proposed self-administration.

Of the 28 Jury members who were able to participate in the final vote, 20 either strongly agreed or tended to agree the law should change to permit assisted dying in England. This compares to 7 who said they either strongly disagreed or tended to disagree with a law change. One person was undecided.

The most important reasons given by members of the Jury in favour of permitting assisted dying that gained the greatest number of votes were:

• To stop pain.
• Having the option to end your own life.
• Knowledge that you can die with dignity if the time comes.

Members were asked: “If the law is changed to permit assisted dying in England, what should it include? What should it exclude?”. Nine voted that “Intolerable suffering (physical) should be considered within the eligibility criteria.” with no one voting to exclude it.

The Jury’s recommendation aligns with the public’s longstanding support for assisted dying, as reflected in numerous surveys over the years.

In addition to supporting legalisation, the jury also called for the decriminalisation of assisting someone to travel abroad for assisted dying and urged for increased funding for NHS palliative care.

Citizens juries have come to similar conclusions in Jersey and France.

Graham Winyard, Director of My Death, My Decision, said:

“The overwhelming consensus from decades of surveys is that most people in the UK support legalising assisted dying. Critics often argue that the public doesn’t fully grasp the complexities, but this Citizens’ Jury has thoroughly examined the issue and reached the same conclusion. The message is unmistakable—there is strong public support for changing the law.

It’s time for politicians to take action. The public clearly wants legislation that offers choice, compassion, and dignity. We hope one of the MPs successful in the Private Members Bill ballot chooses to put forward a compassionate assisted dying bill. Those facing incurable suffering deserve the right to choose a peaceful and dignified death. It’s time to legalise assisted dying.”

Notes:

Members of the MDMD team, as well as individuals affected by the current law on assisted dying, are available for interview upon request

To request an embargoed copy of the report contact the NCOB press office on press@nuffieldbioethics.org

For further comment or information, media should contact Nathan Stilwell at nathan.stilwell@mydeath-mydecision.org.uk or phone 07456200033.

Media can use the following press images and videos, as long as they are attributed to “My Death, My Decision”.

My Death, My Decision is a grassroots campaign group that wants the law in England and Wales to allow mentally competent adults who are terminally ill or intolerably suffering from an incurable condition the option of a legal, safe, and compassionate assisted death. With the support of over 3,000 members and supporters, we advocate for an evidence-based law that would balance individual choice alongside robust safeguards and finally give the people of England and Wales choice at the end of their lives.

A study published in the Journal of Palliative Medicine has confirmed that legalising assisted dying does not diminish patient trust in the medical profession. This is valuable research for politicians in the UK to look to in deciding whether to legalise assisted dying, because it nullifies claims to the contrary made by opponents.

The research, which focused on a diverse group of hospital patients in Washington, D.C., provides crucial evidence that assisted dying laws support, rather than undermine, the trusted relationship between doctors and their patients.

Patients were surveyed about their trust in doctors; some participants were informed that assisted dying was legal in their area, while others were not. The results were clear: patient trust remained strong regardless of whether they were aware of the legal status of assisted dying.

Key Findings:

• Stable Trust: The study found that patients who were informed about the legality of assisted dying reported trust levels in their doctors that were just as high as those who were not informed. Trust in medical professionals remained robust across all groups.
• Increased Support for Assisted Dying: Awareness of assisted dying’s legal status led to a significant increase in patient support for the practice, indicating that better understanding of the law can lead to greater acceptance.
• Reassurance for Marginalised Groups: Importantly, the study found that trust levels remained equally high among both Black and disabled patients, groups that have historically experienced lower trust in healthcare. This suggests that assisted dying laws can be implemented without exacerbating existing disparities in healthcare trust.

This study directly addresses concerns that assisted dying might weaken the ethical foundations of medicine. Instead, it shows that such laws can coexist with strong patient trust, even among those from historically disadvantaged backgrounds.

Trevor Moore, Chair of My Death, My Decision said:

“The results of this study are clear: patients trust their doctors to act in their best interests, and a compassionate assisted dying law won’t change that. This study is a significant affirmation that legalising assisted dying does not undermine trust, but rather reinforces the importance of patient autonomy and informed choice.

“In the UK, adults who are suffering from a condition with no hope of a cure face limited and inhumane options. It’s about time that we followed over 30 jurisdictions around the world in legalising the choice of a dignified and compassionate assisted death.”

Notes

Media should contact Nathan Stilwell at nathan.stilwell@mydeath-mydecision.org.uk or phone 07456200033.

Read the study here.

Media can use the following press images and videos, as long as they are attributed to “My Death, My Decision”.

My Death, My Decision is a grassroots campaign group that wants the law in England and Wales to allow mentally competent adults who are terminally ill or intolerably suffering from an incurable condition the option of a legal, safe, and compassionate assisted death. With the support of over 3,000 members and supporters, we advocate for an evidence-based law that would balance individual choice alongside robust safeguards and finally give the people of England and Wales choice at the end of their lives.

Lord Falconer of Thoroton’s “Assisted Dying for Terminally Ill Adults Bill [HL] “ has been published in the House of Lords, the text of the Bill is available here. 

The second reading of the Bill, which is when members of the House of Lords will debate and vote on it, will take place on Friday 15 November.

My Death, My Decision welcomes the Bill for initiating a much-needed debate that has overwhelming public support. Nevertheless, the law if passed will extend only to terminally ill people and does not extend to those with incurable conditions like multiple sclerosis or locked-in syndrome – the latter being a key focus of our campaign. 

Here’s our analysis of the Bill with our suggestions as to how it could be made more compassionate.

Terminal Illness

In order to qualify as ‘terminally ill’ under the Bill, a person must have a prognosis of six months or fewer to live.

Such a narrow constraint is all the more surprising, given that proposed laws in other jurisdictions around these islands are broader: Scotland has no time limit; Jersey specifies six months generally but twelve for neurodegenerative conditions; and the Isle of Man specifies a maximum twelve months prognosis for all applicants. 

But restricting the Bill to just the terminally ill is problematic in itself as it discriminates against individuals who suffer from incurable conditions causing intolerable suffering but which are not terminal illnesses, as mentioned below. A more compassionate and inclusive law would embrace people who are so suffering – and for whom we campaign. 

Conditions like paralysis from traumatic incidents (e.g. car accidents), locked-in syndrome, ataxia, severe spinal stenosis, and other spinal issues are not classified as terminal by medical professionals. Additionally, diseases such as multiple sclerosis, Parkinson’s, Huntington’s, progressive supranuclear palsy, and motor neurone disease may not be deemed terminal, or the diagnosis of terminal status may come too late, when the patient is already enduring significant pain or has lost mental capacity.

The requirement of a high court judge

The requirement for a High Court judge to approve assisted dying requests is an excessive and burdensome barrier and in fact came about in an earlier Bill due to a legal misunderstanding (see Professor Penney Lewis’s essay which explains it).

Not one of the 31 jurisdictions around the world with legal assisted dying requires this. This may cause significant delays, cost and bureaucracy while adding undue stress to terminally ill patients seeking a dignified end to their suffering. Why?

The patient must take the life-ending medication themselves.

The Bill says the patient must take the life-ending drugs themselves, they can’t have a doctor administer them. This places the burden on the dying person. As can be seen from other jurisdictions, allowing doctors to administer the medication ensures a more humane and controlled process, safeguarding the dignity and well-being of the person during their final moments. This whole debate is about individual choice, so why not give them the choice?

In New Zealand, 92% of patients opted for an injection administered by a healthcare professional. In 2022 across Canada there were 13,241 assisted deaths, but fewer than seven deaths were self-administered. 

The Bill has welcome provisions against coercion

The Bill’s strict rules against coercion are crucial for protecting vulnerable people from being pressured into their end-of-life choices. The harsh penalties for anyone who tries to force or manipulate someone into seeking an assisted death show how serious the Bill is about keeping these decisions voluntary and well-thought-out. This helps make sure that assisted dying is a choice made freely by the patient.

This Bill ensures the government keeps a close eye on assisted dying.

The Bill’s plan for a mandatory review after five years is a way to see how well the law is working. This review gives a chance to address any issues, listen to feedback from those involved, and make changes to better help terminally ill patients. It shows a commitment to constantly improving and being responsive to how the law is actually used in real life.

The law should however also include provision for a review as to its scope, so that consideration is given as to whether the law should be extended to enable the incurably suffering to ask for help.

What happens next?

Keir Starmer recently doubled down on his vow to give the bill enough parliamentary time to pass, but it’s unclear whether this will apply to a Bill in the House of Lords. Laws that are started by MPs from the elected House have a much better chance of success.

Lord Falconer made a previous attempt to change the law in 2014 but it failed due to the impending General Election in 2015, despite passing the Second Reading in the House of Lords. This Bill will likely need government help if it is not to run out of time.

Trevor Moore, Chair of My Death, My Decision said:

“We commend Lord Falconer for his valiant efforts to move the assisted dying debate forward in the House of Lords. Everyone close to this issue is united in wanting change – we can all surely agree that the current law is inhumane.

Nevertheless, it’s regrettable that this Bill will restrict assisted dying to people who are terminally ill, with a narrow criterion of six months or fewer to live. Politicians must have the opportunity to debate a bill that allows the choice to adults who are suffering unbearably but not necessarily terminally ill – people with conditions like Parkinson’s and Multiple Sclerosis. People who are suffering like that deserve choice, just as much as people who are terminally ill.”

Notes

Media should contact Nathan Stilwell at nathan.stilwell@mydeath-mydecision.org.uk or phone 07456200033.

Media can use the following press images and videos, as long as they are attributed to “My Death, My Decision”.

My Death, My Decision is a grassroots campaign group that wants the law in England and Wales to allow mentally competent adults who are terminally ill or intolerably suffering from an incurable condition the option of a legal, safe, and compassionate assisted death. With the support of over 3,000 members and supporters, we advocate for an evidence-based law that would balance individual choice alongside robust safeguards and finally give the people of England and Wales choice at the end of their lives.

My Death, My Decision is proud to launch a Northern Ireland section today. Led by Gavin Walker, this regional group will begin to lay the foundations for a compassionate assisted dying law in Northern Ireland.

Assisting anyone to die is illegal under Section 13 of the Criminal Justice Act (Northern Ireland) 1966. 

If anyone would like to join My Death, My Decision Northern Ireland, please contact mdmd.nireland@gmail.com or join their Facebook group.

The special Oireachtas committee in the Republic of Ireland recommended back in March that legislation should be introduced to allow for assisted dying. An important consequence of a law in the Republic is that Irish citizens (or ordinary residents for twelve months) would be eligible. This would allow Northern Irish applicants to be able to access an assisted death in the Republic under the Irish Nationality and Citizenship Act of 1956 and the Good Friday Agreement.

Gavin Walker, Chair of My Death, My Decision Northern Ireland, said:

“The recommendations of the Oireachtas Committee – alongside progress on Assisted Dying legislation in Scotland, Jersey and the Isle of Man – means Northern Ireland must now engage in a debate to determine the best way forward on this issue. My Death, My Decision Northern Ireland will work to ensure that when legislation is brought forward it reflects the wishes of the people of Northern Ireland and is not a knee-jerk reaction to legal changes in neighbouring jurisdictions.”

Trevor Moore, Chair of My Death, My Decision, said:

“We are delighted to launch this new regional branch of our grassroots campaign group. The people of Northern Ireland shouldn’t have Westminster or the Oireachtas choose what options they have at the end of their lives, it’s right that they decide on a compassionate law for themselves. No one should be forced to suffer against their will. ”

Notes:

Members of the MDMD team, as well as individuals affected by the current law on assisted dying, are available for interview upon request

For further comment or information, media should contact Nathan Stilwell at nathan.stilwell@mydeath-mydecision.org.uk or phone 07456200033.

Media can use the following press images and videos, as long as they are attributed to “My Death, My Decision”.

My Death, My Decision is a grassroots campaign group that wants the law in England and Wales to allow mentally competent adults who are terminally ill or intolerably suffering from an incurable condition the option of a legal, safe, and compassionate assisted death. With the support of over 3,000 members and supporters, we advocate for an evidence-based law that would balance individual choice alongside robust safeguards and finally give the people of England and Wales choice at the end of their lives.

Isle of Man’s Assisted Dying Bill passes key vote

The Isle of Man moved one step closer to a compassionate assisted dying law today, as Dr Alex Allinson’s Assisted Dying Bill passed the third reading, 16 to 8. My Death, My Decision welcomes this historic move.  

The House of Keys, the lower house of Tynwald, Isle of Man’s parliament, made several amendments to the Bill published in May.

• People who have been given 12 months left to live by a doctor will be eligible, rather than the originally proposed six months 
• Patients must be a resident of the Isle of Man for a minimum of five years, rather than one year. 
• Doctors will not be allowed to administer assisted dying, patients will have to take medication themselves.

Regrettably, the law will not extend the choice of help to die to the incurably suffering, who are not necessarily terminally ill. That means that those suffering unbearably from conditions like Huntington’s or Locked-in Syndrome will be denied the option to end their suffering.

The debate’s earlier session heard an emotional plea against the referendum amendment from Sue Biggerstaff whose late husband Simon suffered a horrific death from motor neurone disease (MND). Simon’s life, as he endured paralysis from the neck down within just two months of his diagnosis, ended in avoidable pain and suffering. 

Mrs Biggerstaff told politicians: “There was a total loss of dignity. He couldn’t speak properly, couldn’t do anything… There were so many horrible, horrible things happening to him. Nobody should have to live through it. It’s just awful. Awful.”

The Bill will now go onto the Legislative Council, the Isle of Man’s upper chamber, for further debate. It could then receive Royal Assent in 2025, followed by consideration of how the law will be implemented. Assisted dying could potentially be available to terminally ill people from 2027.

Trevor Moore, Chair of My Death, My Decision said:

“Today we have seen historic developments as the Isle of Man moves toward a compassionate option for people at the end of their life. We hope politicians in England and Wales look towards the Island as a positive example when the issue comes up for debate in Westminster before too long.

At My Death, My Decision we believe that competent adults who are intolerably suffering from incurable conditions  – like locked-in syndrome, or for example paralysed after an accident – deserve the choice of an assisted, dignified death. That is what we will continue to campaign for.”

Notes

Media should contact Nathan Stilwell at nathan.stilwell@mydeath-mydecision.org.uk or phone 07456200033.

My Death, My Decision is a grassroots campaign group that wants the law in England and Wales to allow mentally competent adults who are terminally ill or intolerably suffering from an incurable condition the option of a legal, safe, and compassionate assisted death. With the support of over 3,000 members and supporters, we advocate for an evidence-based law that would balance individual choice alongside robust safeguards and finally give the people of England and Wales choice at the end of their lives.

An Assisted Dying Bill has been introduced in the House of Lords. Lord Falconer of Thoroton was chosen second in the ballot to introduce the “Assisted Dying for Terminally Ill Adults Bill [HL] “, which will have it’s first reading on Friday 26 July. My Death, My Decision welcomes the bill for initiating a much-needed debate. However, we are disappointed that it is limited to terminally ill patients and does not extend to those with incurable conditions like multiple sclerosis or locked-in syndrome.

Since it was drawn second, the Bill is likely to be debated over the coming year. If it receives sufficient support, it could become law. Keir Starmer recently doubled down on his vow to give the bill enough parliamentary time to pass.

Lord Falconer made a previous attempt to change the law in 2014 but it failed due to the impending General Election in 2015, despite passing the Second Reading in the House of Lords. 

Currently, assisting someone to end their life is a criminal offence in England and Wales, carrying a maximum prison sentence of up to fourteen years. However, if the Assisted Dying Bill becomes law, people suffering from terminal illnesses could be helped to die provided they reached a voluntary decision. Previous attempts to change the law included the need for an independent judge.

However, this Bill has already limited itself just to terminally adults. This means politicians won’t even have the opportunity to debate whether people who are not terminally ill should have access to an assisted dying. This means people with conditions like mutlple sclerosis and locked-in syndrome will be banned from accessing the law. 

Trevor Moore, Chair of My Death, My Decision said:

“We welcome that changing the law on assisted dying will soon come before Parliament, particularly in light of the Prime Minister’s assurance that the government will ensure proper time for a debate and vote on the issue.

Nevertheless, in being restricted to the terminally ill, the Bill risks discriminating against those suffering unbearably from incurable conditions, like Huntington’s and Locked-in Syndrome, so we will continue to campaign on their behalf.This could be the beginning of the end of a successful campaign to give people compassion and autonomy.”

Notes

Media should contact Nathan Stilwell at nathan.stilwell@mydeath-mydecision.org.uk or phone 07456200033.

Media can use the following press images and videos, as long as they are attributed to “My Death, My Decision”.

My Death, My Decision is a grassroots campaign group that wants the law in England and Wales to allow mentally competent adults who are terminally ill or intolerably suffering from an incurable condition the option of a legal, safe, and compassionate assisted death. With the support of over 3,000 members and supporters, we advocate for an evidence-based law that would balance individual choice alongside robust safeguards and finally give the people of England and Wales choice at the end of their lives.

The Isle of Man moved one step closer to a compassionate assisted dying law today, as Dr Alex Allinson’s Assisted Dying Bill passed the clauses stage. My Death, My Decision welcomes this historic move but is disappointed that the Bill won’t give the incurably suffering, who are not necessarily terminally ill, this end-of-life choice.

The House of Keys, the lower house of Tynwald, Isle of Man’s parliament, made several amendments to the Bill published in May.

• People who have been given 12 months left to live by a doctor will be eligible, rather than six months 
• Patients must be a resident of the Isle of Man for a minimum of five years, rather than one year. 
• Attempts to severely limit access for eligible patients and to remove the choice from healthcare entirely were defeated. 
• Doctors will not be allowed to administer assisted dying, patients will have to take medication themselves.

There were also several delaying tactics by clear opponents of the Bill. There was a vote to postpone the debate until November, for no apparent reason, 14 votes to 9.

Opponents also produced a last-minute amendment to require a referendum on assisted dying, voted down by 12 to 11. If opponents were sincere about a referendum being required, the motion could have been introduced or even suggested two years ago, when Dr Alex sought leave to introduce the assisted dying bill. 

The debate’s earlier session heard an emotional plea against the referendum amendment from Sue Biggerstaff whose late husband Simon suffered a horrific death from motor neurone disease (MND). Simon’s life, as he endured paralysis from the neck down within just two months of his diagnosis, ended in avoidable pain and suffering. 

Mrs Biggerstaff told politicians: “There was a total loss of dignity. He couldn’t speak properly, couldn’t do anything… There were so many horrible, horrible things happening to him. Nobody should have to live through it. It’s just awful. Awful.”

The Bill will soon have its third reading, before moving onto the Legislative Council, the Isle of Man’s upper chamber, for further debate. It could then receive Royal Assent in 2025, followed by consideration of how the law will be implemented. Assisted dying could potentially be available to terminally ill people from 2027.

Trevor Moore, Chair of My Death, My Decision said:

“Today we have seen historic developments as the Isle of Man moves toward a compassionate option for people at the end of their life. We’ve also seen the unfortunate side of politics, with attempts to delay, confuse and distract. Politicians on the Isle of Man should be commended for seeing through this, and supporting the continued progress of Dr Alex Allinson’s Bill – reflecting the overwhelming public support.

At My Death, My Decision we believe that competent adults who are intolerably suffering from incurable conditions  – like locked-in syndrome, or for example paralysed after an accident – deserve the choice of an assisted, dignified death. A more compassionate approach to the assisted dying debate is possible”

Notes

Media should contact Nathan Stilwell at nathan.stilwell@mydeath-mydecision.org.uk or phone 07456200033.

Media can use the following press images and videos, as long as they are attributed to “My Death, My Decision”.

My Death, My Decision is a grassroots campaign group that wants the law in England and Wales to allow mentally competent adults who are terminally ill or intolerably suffering from an incurable condition the option of a legal, safe, and compassionate assisted death. With the support of over 3,000 members and supporters, we advocate for an evidence-based law that would balance individual choice alongside robust safeguards and finally give the people of England and Wales choice at the end of their lives.

We now have a new parliament, with a radically different makeup from the last one. So what does that mean for assisted dying?

Members of Parliament:

One of the rare things that all political parties seem to agree on, is that assisted dying should be a free vote. Most votes on laws in the UK are government bills, introduced by the people in power, and are ‘whipped’, meaning the parties tell their politicians how to vote. 

Assisted dying is different. A change in the law will most likely have to be introduced by an individual MP, rather than the government, and it will be a free vote, meaning each MP will be able to vote on it with their ‘conscience’.

This election has led to one of the newest parliaments in our history. 

The last vote on assisted dying was nearly a decade ago, and MPs voted overwhelmingly against it. 329 against, 117 in favour, a difference of 213.

• 210 Conservative MPs voted against, only 27 voted in favour.
• 91 Labour MPs voted against, 72 voted in favour.
• 3 Liberal Democrat MPs voted against, three in favour.
• 11 SNP MPs voted against, 14 in favour.

Our new parliament now has a Labour majority, with 412 Labour MPs, completely changing the political makeup. Back in 2015, we can see the difference between Labour MPs voting for and against was a lot closer.

There are now 71 Liberal Democrat MPs. The Liberal Democrat Party have a policy to support assisted dying for the terminally ill, but as mentioned, MPs would still have a free vote on this. There are similarly four new Green MPs, with the Green Party also having a policy of supporting assisted dying.

So looking at the number of MPs alone, an assisted dying law should have a considerably better chance of passing.

Changes since the last vote:

It’s worth remembering that there have been enormous changes since the last vote on assisted dying.

Medical opinion has changed massively since the last vote. In 2021 the British Medical Association (BMA), the largest doctors’ union in the UK, moved to a neutral position, after 50% of its members believed there should be a change in the law. 

The Royal Colleges of Nursing, Surgeons, Physicians, Psychiatrists and the Royal Pharmaceutical Society all hold neutral positions on assisted dying.

A year-long inquiry into assisted dying by parliament, which published its final report in February 2024, said end-of-life care can be improved by introducing assisted dying. It said: 

‘In the evidence we received, we did not see any indications of palliative and end-of-life care deteriorating in quality or provision following the introduction [of assisted dying]; indeed the introduction of [assisted dying] has been linked with an improvement in palliative care in several jurisdictions.’

There’s more data on assisted dying than ever before. According to the Office of Health Economics, in the UK, even if every dying person who needed it had access to good quality palliative care, 6,394 people per year would still have no effective pain relief in the final three months of their life. The Office of National Statistics (ONS) released a report that showed serious health conditions more than double suicide rates.

It’s has become ever clearer that assisted dying is the most compassionate way forward as an end-of-life choice for those who wish it.

Prime Minister:

During the last vote on assisted dying, the then Prime Minister David Cameron indicated he was not in favour.

Britain’s new Prime Minister, Sir Keir Starmer, became the Director of Public Prosecutions (DPP) in 2008. The DPP leads the Crown Prosecution Service (CPS) in England and Wales. Key duties include:

• Determining if there is enough evidence and public interest to prosecute.
• Providing legal guidance to prosecutors.
• Handling major or complex cases.
• Working to improve the criminal justice system.

The DPP’s responsibility is to make the criminal justice system fair and effective.

One of the first cases Starmer dealt with was Daniel James, 23, who was paralysed when the scrum collapsed on him during rugby training. Daniel travelled to Switzerland to end his life accompanied by his parents because he did not want to die alone. Starmer had to decide whether to bring his parents to court, and he chose that putting the family in the dock would be against the public interest.

The next assisted dying case to come across his desk was that of Debbie Purdy, who had multiple sclerosis and wanted to know in advance whether her husband Omar would be prosecuted if he helped her die.

Purdy won her case in The House of Lords, which at the time was the highest court in the UK. They said that the DPP must spell out which facts and circumstances the CPS would take into account in assisted dying cases.

Starmer devised a radical new policy: individuals motivated by compassion to help someone die were unlikely to be prosecuted. This policy is still used by prosecutors today. However, doctors are more likely to be prosecuted for assisting in the suicide of someone in their care.

Starmer’s recent comments:

Sir Keir Starmer has said that he is in favour of assisted dying.

Sir Keir made the commitment when speaking in a phone call with broadcaster Dame Esther Rantzen, who announced in December that she had joined the Swiss assisted dying centre Dignitas. 

Sir Keir told Esther: “I’m personally in favour of changing the law… I think we need to make time. We will make the commitment. Esther, I can give you that commitment right now.”

Starmer has intense insider knowledge of the debate and the intricacies of it – indeed he’s been a core part of one of the biggest changes to assisted dying in the UK.

Leaders make a big difference. It is said that David Cameron’s support of equal marriage in 2013 considerably aided the free vote to pass. 

What comes next?

We still have an almighty task of getting an assisted dying debate in the first place. As mentioned above, assisted dying will most likely have to be a Private Members’ Bill and those are quite literally chosen at random.

The next opportunity for one of those is roughly two weeks after the King’s speech, where the 20 MPs will be chosen to introduce their choice of bill. (415 MPs entered the ballot in November 2023).

If an MP chooses to promote a bill on assisted dying, we will hope to work closely with them to produce the most compassionate law possible. If that happens, we really could see an assisted dying law in England and Wales before the end of the decade.

Trevor Moore, Chair of My Death, My Decision, said:

“This new parliament represents the biggest opportunity for an assisted dying law change that England and Wales has ever seen. Public and medical opinion have changed massively since the last vote in 2015. The time has therefore come for politicians to reflect that and change the law.

“We will work with this new parliament to make the case for change. We need the public’s support to make this happen. Adults who are intolerably suffering from a condition without a cure deserve the right to make a choice about their lives and their deaths. It’s in politicians’ hands to achieve that.”

Notes:

Members of the MDMD team, as well as individuals affected by the current law on assisted dying, are available for interview upon request

For further comment or information, media should contact Nathan Stilwell at nathan.stilwell@mydeath-mydecision.org.uk or phone 07456200033.

Media can use the following press images and videos, as long as they are attributed to “My Death, My Decision”.

My Death, My Decision is a grassroots campaign group that wants the law in England and Wales to allow mentally competent adults who are terminally ill or intolerably suffering from an incurable condition the option of a legal, safe, and compassionate assisted death. With the support of over 3,000 members and supporters, we advocate for an evidence-based law that would balance individual choice alongside robust safeguards and finally give the people of England and Wales choice at the end of their lives.