WHO WE ARE

My Death, My Decision is a grassroots campaign group that wants the law in England and Wales to allow those who are terminally ill or intolerably suffering the option of a legal, safe, and compassionate assisted death. 

We were founded to represent the interests of those facing intolerable and incurable suffering, at a time when no other right to die organisation would, and to advocate on their behalf to secure a lasting change in the law

Since our incorporation in 2019, we have quickly become one of the leading assisted dying organisations in England and Wales, and are at the forefront of social change: nearly 90% of the public now favours a change in the law to allow assisted dying for those who are incurably suffering or terminally ill. 

We are committed to proposing an evidence-based law that would balance individual choice alongside robust safeguards, and we are not afraid to confront uncomfortable truths or expose specious arguments. 

With the help of our members, supporters, and patrons we help to broaden the assisted dying debate and seek to enshrine the values of autonomy, dignity, and compassion into assisted dying legislation.

OUR WIDER ROLE

My Death, My Decision is a co-founding member of the UK Assisted Dying Coalition, and is a member of the worldwide alliance for assisted dying reform, the World Federation of Right-to-Die Societies.

OUR TEAM

OUR PATRONS

PATRONS REMEMBERED

Dawn Voice Cooper

Dawn Voice Cooper was an active campaigner and social justice advocate, and also a keen member of our campaign. It was her belief that assisted dying is the compassionate, kind and gentle option  for end-of-life that should be offered to all adults of sound mind in the UK who are either terminally ill and/or incurably suffering, as she was.

Dawn ended her life at Lifecircle in Switzerland in October 2021. She hoped that her death abroad could help shine a spotlight on the inadequacies of our laws in the UK and bring about change to allow others to access what she called ‘this wonderful form of end of life care’. She died as she lived her life: full of compassion, humour, and self determination!

Paul Lamb

Assisted Dying Campaigner Paul Lamb, was well known for challenging the law prohibiting assisted dying in England and Wales. In July 2019, Paul issued proceedings in the High Court for judicial review of the UK’s law on assisted dying.

Paul, was severely injured in a car accident in 1990 and had no function below his neck, apart from limited movement in his right hand. He required around the clock care and lived in constant pain. Paul explained that his motivation for legal action is to achieve something for the benefit of the many people who face similarly challenging circumstances. Paul died in June 2021.

CLINICAL ADVISORY GROUP

Our campaign is supported by the work of My Death, My Decision’s expert Clinical Advisory Group. The group exists to help advise on clinical matters and represent medics who support assisted dying reform. Membership is free and open to any professional with relevant clinical or academic experience, whether you are practising, studying, or retired. 

For any questions or more information please contact colin.brewer@mydeath-mydecision.org.uk

CHAIRS

 

Colin Brewer

Colin formerly directed the Westminster Hospital’s alcoholism unit and the Stapleford Centre. In 2015 he co-published the book ,“I’ll See Myself Out, Thank You”, in which he described conducting mental capacity assessments for six British citizens hoping to end their life in Switzerland. He has also written a book, “Let Me Not Get Alzheimer’s Sweet Heaven”, which explores the dilemma of dementia and assisted dying. He has previously served as a committee member for the Voluntary Euthanasia Society (now Dignity in Dying).

 

 

 

Graham Winyard

Graham retired in 2007 from a career in medical management and public health that included 6 years as Medical Director of the NHS. His interest in assisted dying followed the death of his first wife, Sandy, from cancer aged 51. He became a founding member of Healthcare Professionals for Assisted Dying and was a member of the Board of Dignity in Dying for three years.

For any questions or more information please contact colin.brewer@mydeath-mydecision.org.uk or graham.winyard@mydeath-mydecision.org.uk.

THEIR PRIORITIES

CHAMPIONING PATIENT END-OF-LIFE CHOICES

My Death, My Decision’s Clinical Advisory Group campaigns for the recognition of assisted dying as a basic healthcare right.

The view of the Clinical Advisory Group is that many progressive and neurological conditions can have effects upon their patients which are as bad as terminal illnesses, if not worse. They believe that those facing intolerable and incurable suffering should be given a choice over how and when they die. 

They believe people with terminal or intolerable conditions should have access to a range of end of life choices including palliative care, terminal sedation and assisted dying. In jurisdictions where this approach has been adopted, evidence suggests that end of life care works best when both palliative care and legal assisted dying work together. 

They also believe that it is important for medics and nurses in particular to recognise their role within the assisted dying debate and contribute their expertise.

TACKLING RESTRICTIONS ON THE DOCTOR-PATIENT RELATIONSHIP

The Clinical Advisory Group believes it is vital that doctors and patients can have an open, frank, and honest conversation about end of life issues. Doctors should feel equipped to talk without fear or embarrassment about dying and encourage their patients to make their wishes known through Advance Decisions or a Lasting Power of Attorney. 

If patients want to ask about ending their lives by going to Switzerland, it is important that doctors should not be prevented from engaging in such conversations, even if only to explain a patient’s condition and alternative options. Pending a change in the law, if ending their life abroad is a patient’s longstanding, voluntary, and informed wish, legal and professional guidance should enable medics to provide medical reports and maintain patient confidentiality.